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From books and magazines, to television and movies, you can’t escape the sights and sounds of couples in love.You can hear them dedicating sappy love songs to one another on the radio (do people REALLY do that?Since you have no partner to complain to about these inane comments, find the friend who says, “Well, this sucks” and complain to that person.That person may not be walking in your shoes but at least they are rolling their eyeballs with you about the platitudes.As a single parent you likely do not have the luxury of quitting your job so that you can attend to all of this. What helped me was getting a really unattractive and enormous whiteboard that I mounted to the front door.I drew a monthly calendar and listed every appointment and therapy session.), you see them on romantic dates in restaurants, they are holding hands at amusement parks, they are strangers, they are your friends, your relatives, your work buddies.But you, a single parent to a special needs child, are somehow on the sidelines watching and wondering if you and your child will ever have a true and permanent love in your lives, too.
To get to this point Eliza spent 100 days in the NICU, has had over 5,000 hours of various therapies and her medical needs are attended to by eight different specialists.Once you’ve gotten over the initial shock of your child’s special-needs status, you now have to figure out how to navigate new worlds.Instead of a handful of well-baby check-ups each year, you may have to navigate multiple specialists, Early Intervention, more than a few therapists, and in later years the education system.The unknown was what the needs would be, would they resolve or would they be lifelong special needs.Not having a third trimester in utero causes a whole bunch of things to go awry and despite the mantra of some organizations that “support” parents of premature children, they don’t all magically “catch up” by the age of two.